Introduction
Tom and Lucinda Barnes—both adults with intellectual and developmental disabilities (IDD)
—had been married for several years when the state sought to annul their marriage.
They had been living with Lucinda’s parents and raising their two children in a shared family home, when an allegation about Lucinda’s treatment of one of the children led the state to investigate the family. During a subsequent lawsuit about where and with whom the children should live, a different branch of the state acted on an anonymous tip and removed Lucinda from her home and family. Among other allegations, the state claimed that Tom and Lucinda’s marriage should be legally annulled because Lucinda’s diagnosed IDD meant she lacked capacity to consent to the marriage. After nearly a year of fighting in court, Lucinda was allowed to return home, and her marriage was left intact. Still, the intrusion into Tom and Lucinda’s intimate life caused great damage to their family.
In addition to overt state intervention in an ongoing marriage, there are other ways the state, legally appointed guardians,
and others can deprive adults with IDD of marriage. For example, a putative or actual guardian can decide not to approve a marriage,
and a court clerk can choose not to grant a license based on a person’s appearance.
Tom and Lucinda’s experience is but one version of how the right to marry can be abridged or cut off for adults with disabilities.
For people with disabilities, the right to marry—like the right to have or raise children—is one that for generations was so unimaginable that the United States Supreme Court has almost never referenced it.
This absence is in stark contrast to marriage in other contexts, in which the Supreme Court has opined that marriage is “fundamental to the very existence and survival of the race.”
The law’s failure to consider people with disabilities within the framework of the American family is consistent with the historical treatment of people with disabilities, many of whom were institutionalized and left without meaningful family relationships of any kind.
Indeed, the denial of the right to marry is yet another denial in a line of relational deprivations that disabled adults face, including deprivations to sexual intimacy
and the parent–child relationship.
It is impossible to estimate how many people like Tom and Lucinda experience this kind of intrusion into their marital lives. Cases like theirs occur in different courts depending on the state, and many are litigated outside of the public eye, if at all.
The paucity of publicly available decisions obscures the question of marriage access for people with IDD from broader scrutiny and renders it nearly impossible to know with certainty the scope of state intervention and judicial resolutions. There is evidence, however, that marriage deprivation is not uncommon.
This Essay provides critical insight into the understudied question of how the law conceives of marital capacity in the context of adults with IDD.
In every state, statutes or case law provide that the ability to marry hinges upon capacity, and many states also have statutes that provide lack of capacity as a ground to render a marriage void or voidable.
Both sets of laws leave open a pathway for a judicial determination of incapacity, rendering marriages in which one partner is a person with IDD unstable in ways that are inconsistent with the very purpose of the institution.
In undertaking this analysis, this Essay bridges two bodies of scholarship: first, scholarship interrogating the function and purpose of marriage, and the government’s role in who can claim legitimacy within the American family;
and second, scholarship illuminating the marginalization of people with disabilities in intimate and family life.
This Essay focuses specifically on adults with IDD, as distinguished from other disabilities, because within the diverse and varied community of people with disabilities, people with IDD are among the most likely to face legal capacity challenges.
Additionally, people with IDD are a diverse and complex group who present unique issues in the context of marriage-capacity decisions, distinct certainly from people with physical disabilities
but also from those with psychiatric- or age-related cognitive disabilities.
In reviewing a selection of judicial decisions related to marital capacity for adults with IDD from the last sixty years,
this Essay identifies two different and contradictory understandings of the relationship between marriage and capacity. In the first conception, courts understand capacity as a necessary prerequisite to marriage; they block people with IDD from marrying based on factors such as prior romantic and sexual history, financial decision-making, and ability to care for one’s self independently.
Courts issuing these decisions not only exclude certain individuals from normative conceptions of the family, delegitimizing and preventing intimate relationships, but also construct notions of the modern American family as an institution reserved for those who uphold certain moral standards of romantic and sexual behavior and are capable of financial and practical independence.
The second conception of capacity takes an almost opposite view. In the context of guardianship proceedings,
a small number of courts have found that an existing marriage is a protective and supportive relationship that can strengthen and even increase the decision-making capacity of an adult.
Significantly, this vision rests on the notion that capacity can be expanded by people and supports beyond the individual in question.
This Essay demonstrates that these two sets of cases, taken together, reveal both the extent to which capacity can bar certain nonconforming individuals from marriage and the ways marriage itself can expand notions of capacity.
Building on the idea that the marital relationship can be capacity expanding, this Essay argues that supported decision-making (SDM)—an increasingly well-recognized means of ensuring the autonomy and decision-making capacity of people with IDD—can offer a significant intervention to this field.
SDM offers a means both of expanding access to marriage for people with IDD and of recasting the institution of marriage as one that accepts and celebrates human interdependence as inherent and welcome, rather than understanding it as a problem or failure.
In this reformed notion of marriage, the benefits of the marital relationship could be accessible to not only those who meet society’s expectations of independence and self-sufficiency but also those who most need the support and care of the community around them. While this Essay critiques limits on the right to marry, it neither promotes nor criticizes the institution itself.
Instead, it responds to the very real desire of certain members in the disability community to have the state sanction and recognize their choices to enter loving and supportive relationships.
Part I of this Essay defines the terms IDD and “capacity,” explaining the distinction between capacity as a mental status and capacity to marry. Next, it discusses the legal foundation and cultural meaning of marriage, focusing on the notion of a married couple as a self-sufficient unit. It also describes how disability status has interacted with the right to marry and reviews present-day barriers people with disabilities face when they seek to wed. Part II examines both the statutes and case law relating to marital capacity. It explores a selection of cases, identifying two very different ways of understanding marital capacity. Part III critiques how some judicial decisions both idealize the status of marriage and hold people with disabilities to unrealistic and unattainable standards before allowing them to marry. It proposes avenues for courts, advocates, and individuals with IDD to counter ableism in marital capacity cases. Ultimately, Part III urges courts and advocates to embrace SDM in the marital capacity context, both as a vehicle to increase access to marriage for people with IDD and to counter the normative, idealized vision of marriage as a self-sufficient unit that should not require external support.